Creating opportunities
for those with disabilities
to thrive
Jake’s Help From Heaven, founded in 2011, is a non-profit foundation dedicated to supporting individuals with multiple medical challenges and disabilities.
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A Late Diagnosis: Losing My Mom to Rare Disease
“We kept asking doctors what was wrong. No one had answers. And then, just like that, I was 19 years old and saying goodbye to my mom.”
Losing a Son to Rare Disease: Parental Isolation & Grief
“When you’re a rare parent, it’s not just the disease—it’s the loneliness, the constant feeling that no one really gets it. And when your child is gone, that grief is even more complicated. Jack taught me so much. I want other parents to know they’re not alone.”
What It’s Like to Lose Your Best Friend at 18
“She was supposed to be here for the birthdays, the firsts, the little moments that feel big. But she’s not—and that’s the part that never stops hurting.”
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