by JHFHBrightSighted | Apr 10, 2025 | Blog, News, Podcast
Debbie Waffle built a life filled with joy, purpose, and hope—but nothing could prepare her for what came next. Her daughter Kelsey’s medical challenges grew more complex over time, leaving Debbie desperate for answers and overwhelmed with fear. And when Kelsey died,...
by JHFHBrightSighted | Apr 2, 2025 | Blog, News, Podcast
Being a rare disease parent means living in a world of unpredictability—and in this powerful follow-up episode, Jessica Troiano shares what that really looks like. From a terrifying recent emergency surgery to the countless difficult decisions she’s had to make over...
by JHFHBrightSighted | Mar 27, 2025 | Blog, News, Podcast
Losing a sister at 15 changes everything. Sophia Allen opens up about the heartbreak of losing Olivia—her sister, her best friend, her constant. She shares what people don’t understand about sibling grief, the loneliness of navigating loss at such a young age, and the...
by JHFHBrightSighted | Mar 20, 2025 | Blog, News, Podcast
Grief is never one-size-fits-all. Heather sits down with the Best family—Lisa, along with her adult children, Aly and Tyler—to talk about life after the sudden loss of their husband and father, Bob Best, who passed away on May 7, 2018. They share how the same loss can...
by JHFHBrightSighted | Mar 13, 2025 | Blog, News, Podcast
Grief is never one-size-fits-all. Heather sits down with the Best family—Lisa, along with her adult children, Aly and Tyler—to talk about life after the sudden loss of their husband and father, Bob Best, who passed away on May 7, 2018. They share how the same loss can...
by JHFHBrightSighted | Mar 6, 2025 | Blog, News, Podcast
What do you do when doctors tell you your baby won’t survive? For Jessica Troiano, the answer was simple: fight. In this episode, Jessica shares her journey of raising Jude, her 13-year-old son with a rare genetic condition, PHGDH deficiency, and 15 medical diagnoses....
