Dear Jakey,
I don’t know how you do it. There remains so much about you that is a total mystery. Just when I think we understand each other I find myself completely at a loss over what is going on and what you need. You appear to be comfortable and adjusting as well as can be expected to your spica. Yet something is up because you are not sleeping. I know it seems like you just can’t make me happy – I complain if you sleep too much, I complain if you don’t sleep enough. But last night was odd, even for you. You just didn’t sleep. At all. Wide eyed all night. Now usually when that happens it is a particularly bad seizure night – but that doesn’t seem to be the case. You didn’t even sleep all day yesterday which would be the other reason I would expect you up all night. And even now you remain awake. There is so much about you that I just don’t know or understand and it makes me worried. Not that I think there is anything particularly wrong going on now, but just because there is really no way to be sure.
Love,
Mommy