by JHFHBrightSighted | Apr 10, 2025 | Blog, News, Podcast
Debbie Waffle built a life filled with joy, purpose, and hope—but nothing could prepare her for what came next. Her daughter Kelsey’s medical challenges grew more complex over time, leaving Debbie desperate for answers and overwhelmed with fear. And when Kelsey died,...
by JHFHBrightSighted | Apr 2, 2025 | Blog, News, Podcast
Being a rare disease parent means living in a world of unpredictability—and in this powerful follow-up episode, Jessica Troiano shares what that really looks like. From a terrifying recent emergency surgery to the countless difficult decisions she’s had to make over...
by JHFHBrightSighted | Mar 6, 2025 | Blog, News, Podcast
What do you do when doctors tell you your baby won’t survive? For Jessica Troiano, the answer was simple: fight. In this episode, Jessica shares her journey of raising Jude, her 13-year-old son with a rare genetic condition, PHGDH deficiency, and 15 medical diagnoses....
by JHFHBrightSighted | Oct 17, 2024 | Blog, News, Podcast
What does it take to grow as a podcaster in the delicate space of grief and rare disease? In this reflective episode, Heather shares her journey from season 1 — the unexpected lessons, emotional breakthroughs, and how the powerful stories from guests have shaped her...
by JHFHBrightSighted | Sep 26, 2024 | Blog, News, Podcast
What’s it like to raise a child with a rare disease? In this episode of A Place of Yes, Heather connects with Jeff Ames, whose daughter Tessa lives with Dravet syndrome. As rare disease parents, Heather and Jeff share the unique struggles and unexpected joys of...
