by JHFHBrightSighted | Mar 6, 2025 | Blog, News, Podcast
What do you do when doctors tell you your baby won’t survive? For Jessica Troiano, the answer was simple: fight. In this episode, Jessica shares her journey of raising Jude, her 13-year-old son with a rare genetic condition, PHGDH deficiency, and 15 medical diagnoses....
by JHFHBrightSighted | Feb 6, 2025 | Blog, News, Podcast
MacKenzie Zarzycki’s mother checked herself into the hospital for what she thought was COVID-19 shortly after she was on life support. In this episode of A Place of Yes, MacKenzie, host of the tourism podcast Destination Saratoga All Access, shares her journey of...
by JHFHBrightSighted | Jan 30, 2025 | Blog, News, Podcast
Picture this—a packed restaurant, margaritas flowing, and a room full of people who love Jake. That’s Cantina Day. It’s more than just a tradition—it’s a celebration of his life, a space to share memories, and a reminder that grief doesn’t have to be lonely. We sat...
by JHFHBrightSighted | Jan 23, 2025 | Blog, News, Podcast
What if the right piece of equipment could restore someone’s independence? Heather sits down with Joe Keiderling, the heart and mind behind Rifton Equipment, to discuss how their adaptive designs are more than just tools—they’re lifelines. From helping kids take...
by JHFHBrightSighted | Jan 16, 2025 | Blog, News, Podcast
Behind every rare disease diagnosis lies a story of heartbreak, resilience, and unshakable love. Heather sits down with Effie Parks, award-winning host of Once Upon a Gene and mother to Ford, who lives with CTNNB1 syndrome. Together, they uncover the raw truths of...
