by JHFHBrightSighted | Mar 6, 2025 | Blog, News, Podcast
What do you do when doctors tell you your baby won’t survive? For Jessica Troiano, the answer was simple: fight. In this episode, Jessica shares her journey of raising Jude, her 13-year-old son with a rare genetic condition, PHGDH deficiency, and 15 medical diagnoses....
by JHFHBrightSighted | Oct 17, 2024 | Blog, News, Podcast
What does it take to grow as a podcaster in the delicate space of grief and rare disease? In this reflective episode, Heather shares her journey from season 1 — the unexpected lessons, emotional breakthroughs, and how the powerful stories from guests have shaped her...
by JHFHBrightSighted | Sep 26, 2024 | Blog, News, Podcast
What’s it like to raise a child with a rare disease? In this episode of A Place of Yes, Heather connects with Jeff Ames, whose daughter Tessa lives with Dravet syndrome. As rare disease parents, Heather and Jeff share the unique struggles and unexpected joys of...
