by JHFHBrightSighted | Jul 10, 2025 | Blog, News, Podcast
This week’s episode is sponsored by Freedom Concepts, creators of custom adaptive tricycles, Chill-Out Chairs, and early intervention equipment that help individuals of all ages and abilities experience mobility, comfort, and dignity. Heather shares the powerful...
by JHFHBrightSighted | Jun 26, 2025 | Blog, News, Podcast
At just 19 years old, she lost her mom to Alpha-1 Antitrypsin Deficiency—a rare genetic disorder that went undiagnosed until it was too late. In this episode, she shares what it was like to watch her mom suffer without answers, and how the grief of that experience...
by JHFHBrightSighted | Jun 12, 2025 | Blog, News, Podcast
Dr. Al Freedman knows firsthand what it’s like to be a parent in the rare disease world—his son Jack lived with Spinal Muscular Atrophy for 26 years. In this conversation, he joins Heather to talk about the deep grief and isolation that comes with rare parenting, and...
by JHFHBrightSighted | May 22, 2025 | Blog, News, Podcast
When Amelia Lawrence’s son Leo was born with limited mobility, she didn’t know if he’d ever experience the simple joys other kids take for granted—like riding a bike or sitting comfortably at school. But everything changed when Leo was introduced to adaptive equipment...
by JHFHBrightSighted | May 1, 2025 | Blog, News, Podcast
Jake’s birthday is coming, and it still hurts just as much as it did that first year. In this solo episode, Heather opens up about what it really feels like to face another year without her son—the lead-up, the dread, the heartbreak that anniversaries bring when...
