by JHFHBrightSighted | Jul 10, 2025 | Blog, News, Podcast
This week’s episode is sponsored by Freedom Concepts, creators of custom adaptive tricycles, Chill-Out Chairs, and early intervention equipment that help individuals of all ages and abilities experience mobility, comfort, and dignity. Heather shares the powerful...
by JHFHBrightSighted | Jul 3, 2025 | Blog, News, Podcast
This week’s episode is a special live recording from Northshire Bookstore in Saratoga Springs, where Heather sits down with author Casey Mulligan Walsh to talk about her deeply moving memoir, The Full Catastrophe. Orphaned by twelve, the only surviving sibling, and...
by JHFHBrightSighted | Jun 26, 2025 | Blog, News, Podcast
At just 19 years old, she lost her mom to Alpha-1 Antitrypsin Deficiency—a rare genetic disorder that went undiagnosed until it was too late. In this episode, she shares what it was like to watch her mom suffer without answers, and how the grief of that experience...
by JHFHBrightSighted | Jun 12, 2025 | Blog, News, Podcast
Dr. Al Freedman knows firsthand what it’s like to be a parent in the rare disease world—his son Jack lived with Spinal Muscular Atrophy for 26 years. In this conversation, he joins Heather to talk about the deep grief and isolation that comes with rare parenting, and...
by JHFHBrightSighted | Jun 5, 2025 | Blog, News, Podcast
Aubrey Ide was only 18 when she lost her best friend Olivia Allen to cancer. In this episode, Aubrey sits down with Heather to share what it’s been like to grieve so young—how the loss changed her, what she misses most, and the milestones that feel so different...
by JHFHBrightSighted | May 29, 2025 | Blog, News, Podcast
Grief doesn’t come with a roadmap—and it definitely doesn’t fit into a 3-day leave policy. In this episode, Heather sits down with Rebecca Feinglos, founder of Grieve Leave, to talk about what it really looks like to take time to mourn. After losing both of her...
