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Register TODAY for Hattie’s Final Mardi Gras

by Heather Straughter | Sep 9, 2018 | Events, Media, News

January 12, 2019

Canfield Casino

Saratoga Springs, NY

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Jake’s Help From Heaven
P.O. Box 809
Saratoga Springs, NY, 12866

(518) 951-0009

info@jakeshelpfromheaven.org

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We can’t wait to see you NEXT WEDNESDAY 12.11 ❤️ Our annual Jake’s Day at @cantinasaratoga is right around the corner — 50% of ALL sales (lunch, dinner, takeout, bar) are donated to JHFH!

This tradition is made even more special because we get to share it with all of you and we love hosting with our friends @heathames + @jeff_ames 🌮🫶

We are grateful for a lot this season. 💕 Thank

We are grateful for a lot this season. 💕

Thankful for our board, our supporters, our families and everyone who helps us do good in Jake’s memory 🫶

BOARD MEMBER SPOTLIGHT 🌟 Dr. Jami Hawthorne W

BOARD MEMBER SPOTLIGHT 🌟 Dr. Jami Hawthorne

We are very fortunate to have Dr. Jami Hawthorne on our board. Having a pediatrician to help us understand some of the rare diseases that we encounter has been priceless. Her perspective and dedication is an integral part of our success!

She was also Ethan and Jake’s pediatrician 🫶 Thank you, Jami!

We love when items come to us to be delivered. Whi

We love when items come to us to be delivered. While we can’t do all the deliveries like we used to and some have to be direct shipment to families, it is still the best part of the job! ❤️

This @specialtomato Out & About Seat was delivered to a long time JHFH family and we loved catching up with them in person!

BOARD MEMBER SPOTLIGHT 🌟 Mandy Weinerman We ar

BOARD MEMBER SPOTLIGHT 🌟 Mandy Weinerman

We are so lucky to have Mandy on our Board of Directors! Not only is she a speech and language pathologist working for North Colonie schools but she takes her role as a board member very seriously.

She is not afraid to share her opinion and advocate wholeheartedly for those without a voice. Her perspective is often leaned upon during meetings as she offers a viewpoint that not many of us experience.

Thank you, Mandy for your service! @mandyweinerman ❤️

The only thing that we love more than thank you no

The only thing that we love more than thank you notes like this is our delivery days with kids like Luke ❤️ his smile says it all!

Swipe to read the thank you note from Luke’s parents that made us smile *almost* as big as Luke 😎

SAVE THE DATE ❤️ our annual Cantina Day Fundra

SAVE THE DATE ❤️ our annual Cantina Day Fundraiser is on Wednesday DECEMBER 11TH and we can’t wait to see you!!

Every year, this is such a cherished day in our community. Since the first year to now seeing all of you @cantinasaratoga to help us raise money & continue creating an impact to honor Jake’s legacy means the world to @heathersstraughter + @brians_70 🫶 We can’t wait to see you on 12.11.24

Make your reservations today - call 518.587.5577 or book online 🌮❤️

BOARD MEMBER SPOTLIGHT 🌟 Beth Alexander Befor

BOARD MEMBER SPOTLIGHT 🌟 Beth Alexander

Before becoming an official board member, Beth Alexander was among our top volunteers and supporters! She was always available to come along on a delivery, prepare and work at our fundraisers, and even donated food from Hattie’s for our cocktail parties. When she joined the board in 2022, it was the natural next step for someone who has been such a pillar for Jake’s Help from Heaven! Thank you @bethalexanderr 🫶

BOARD MEMBER SPOTLIGHT 🌟 Julie Johnson Julie i

BOARD MEMBER SPOTLIGHT 🌟 Julie Johnson

Julie is an OG board member and always up for a delivery. She never says no to the opportunity to join Heather on a delivery, regardless of how far we may need to travel or what she may have on her calendar.

Her dedication and commitment to the work of JHFH are unmatched and we are so lucky to have her on our board! @juliemj910

We just got this sweet thank you after Halloween!

We just got this sweet thank you after Halloween! Arden, whose family was told she would never walk, is trick or treating with her brothers and friend in this picture! She is walking on her own thanks to the providers at Florida’s Paley Institute, that was made possible with out-of-area travel support from JHFH! 🫶🫶

We 🧡 these Halloween memories from our JHFH fam

We 🧡 these Halloween memories from our JHFH family 🎃

BOARD MEMBER SPOTLIGHT 🌟 Before joining the bo

BOARD MEMBER SPOTLIGHT 🌟

Before joining the board, Mike was an active supporter and volunteer for Jake’s help from Heaven. He participated in our Finest Filies & Colts fundraiser as well as always attending Family Fun Day! After joining the board, he has made a major impact by leading our governance committee and offering legal counsel. We are so lucky to have him on our board! Thank you @mbillok 🫶

Meet Rori, she loves her new bouncing chair! This

Meet Rori, she loves her new bouncing chair! This chair will provide vestibular input as well as an alternate seating device that provides optimal postural support and comfort. Now Rori will be able to engage in activities with her family and therapists. 🫶

BOARD SPOTLIGHT 🌟 Alyx Hemsworth Alyx is the o

BOARD SPOTLIGHT 🌟 Alyx Hemsworth

Alyx is the only paid employee that Jake’s Help from Heaven has. We are beyond lucky to have her as she keeps us organized and moving forward!!

She handles our equipment exchange program , gets all board materials ready and distributed to board members ahead of the meetings, handles all of the phone calls and emails from clients and case managers, and whatever other random things Heather asks her to do. She does it all with a smile and we wouldn’t be able to do what we do without her! Thank you, Alyx 🫶

Sometimes our deliveries are like being reunited w

Sometimes our deliveries are like being reunited with old friends! 🥰

We have been working with Miles since he was a baby and he is now 10 years old! It was so great seeing his smile 😊

Last week @heathersstraughter and @juliemj910 went

Last week @heathersstraughter and @juliemj910 went to Queensbury to deliver this @amtryke to Rostyslav. 🚲

Rostyslav has spina bifida and paraparesis of the lower limbs so struggles with biking. This recumbent foot tryke is safer for him and he can’t wait to get out on the road! 🤩

#spinabifida #adaptivebike #spinabifidaawareness #qualityoflife

Things look a litttttle different in the Straughte

Things look a litttttle different in the Straughter house when it comes to getting ready for deliveries 🤣 In the latest edition of ‘Everything’s Jake’ @heathersstraughter talked about how our minds can only hold so many memories on their “hard drive” and ones like this will always be ones to hold onto ❤️

Last week’s episode of @aplaceofyespodcast was a

Last week’s episode of @aplaceofyespodcast was a favorite of ours ❤️ @jeff_ames + @heathersstraughter talked about how parenting a child with a rare disease can feel like you live on another planet..

As many of you know, Jeff and his wife Heath are some of our biggest supporters and we have a SAVE THE DATE for you all! Join us for Cantina Day on 12.11 @cantinasaratoga

You know what time it is!! After our board meeting

You know what time it is!! After our board meetings, we head right into deliveries 🚚 Brian, Jake’s dad, is hard at work building this adaptive bike that just arrived. He will check all the brakes and all the settings before we deliver it, so it’s ready to go for our JHFH families ❤️

All smiles all summer ☀️☀️ we loved gettin

All smiles all summer ☀️☀️ we loved getting to share these smiles with so many of you this summer on our deliveries 🫶

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