Dr. Al Freedman knows firsthand what it’s like to be a parent in the rare disease world—his son Jack lived with Spinal Muscular Atrophy for 26 years. In this conversation, he joins Heather to talk about the deep grief and isolation that comes with rare parenting, and what it means to lose a child to a disease no one else seems to understand. As both a psychologist and a rare disease dad, Dr. Freedman brings a unique perspective—sharing how his personal experience shaped the work he does to support other families navigating similar journeys. This episode is a testament to the love, resilience, and heartbreak of rare parenting—and the community that can be built around it.

Connect with Dr. Al: https://www.rarecounseling.com

Find Heather and Jake’s Help from Heaven:

❤️ APOY Instagram: https://www.instagram.com/aplaceofyespodcast/

❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/

❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/

❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/

❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven

❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast

Listen on Apple Podcasts | Spotify | iHeartRadio

FIND HEATHER & JAKE’S HELP FROM HEAVEN ⬇️

❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/

❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/

❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/

❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven

❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast

Connect with us on social media:
• Heather’s Instagram
• Jake’s Help from Heaven
• Jake’s Help from Heaven IG
• Facebook
• Our YouTube Channel

Keep scrolling for the episode transcript.

Checkout our other episodes

What Life Looks Like After Losing My Husband to Brain Cancer – Maria Quiban Whitesell

“When my husband was diagnosed, I felt completely lost. I wasn’t prepared for the caregiving, the fear, or the grief that came after. I wrote You Can’t Do It Alone because I learned the hardest way possible—none of us should have to walk through this kind of loss alone.”

Gabby Petito’s Moms on “Surviving” Mother’s Day

“The world knows Gabby’s name, but they don’t know what it’s like to wake up every day without her. Birthdays, holidays, Mother’s Day—nothing feels the same. We miss her laugh. Her light. Everything. And there are things we wish we’d said, things we’ll always carry.”

How I Cope with My Son’s Birthday Now That He’s Gone

“His birthday is coming, and my whole body feels it. People think grief fades with time, but these days—birthdays, anniversaries—they hit just as hard. I should be planning a party. Instead, I’m learning how to survive another year without him.”