Dear Jakey,When you were little we used to sing you a song. It went like this:Jake, Jake, JakeJake, Jake, JakeJake Your BootyIt was pretty catchy and I think you liked it. Daddy refused to sing it but the rest of us did it all the time. Even Miss Briana and Ava. ...

Dear Jakey,I may not read you this letter, or I may have to wait until your older. I would never want you to misunderstand it because if it ever made you feel as though I would love you more if things were different that would crush me. I couldn't ever love you...

Dear Jakey,It is raining this morning and I so wanted to keep you and Ethan home with me and have one of our snuggly "home days". Now that you are both off to school we don't get those anymore and on days like today I really miss them. But school is good - you get to...

Dear Jakey,You know how sometimes people look at us like they feel sorry for us? I wonder how this makes you feel. I know it generally pisses me off. But I tend to think you have more grace and patience than me so you probably handle it better. It takes me a while to...

Dear Jake,I love you. I hate that you have to work so hard to stay alive and to participate in life. I started reading another mommy's book last night about a little boy who had a leukodystrophy - the same group of diseases we tested you for last week. His name was...