Jessica Patay is a full-time caregiver to her son with Prader-Willi syndrome—and the founder of We Are Brave Together, a global support network for caregiving moms. In this episode, she joins Heather to talk about the emotional toll of rare parenting, why self-care isn’t a luxury, and what it really takes to show up for yourself when you’re constantly showing up for everyone else. They get honest about burnout, identity loss, and the power of community when you feel like you’re running on empty. If you’ve ever felt like you’re disappearing inside the role of caregiver, this conversation is for you.

FIND JESS:

🌟Bite Size Self Care Suggestions: https://drive.google.com/file/d/1_oy2od5u7P9qyPEvrcR72yqF8J66RGFK/view

🌟We Are Brave Together: https://www.wearebravetogether.org

Find Heather and Jake’s Help from Heaven:

❤️ APOY Instagram: https://www.instagram.com/aplaceofyespodcast/

❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/

❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/

❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/

❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven

❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast

Listen on Apple Podcasts | Spotify | iHeartRadio

FIND HEATHER & JAKE’S HELP FROM HEAVEN ⬇️

❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/

❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/

❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/

❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven

❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast

Connect with us on social media:
• Heather’s Instagram
• Jake’s Help from Heaven
• Jake’s Help from Heaven IG
• Facebook
• Our YouTube Channel

Keep scrolling for the episode transcript.

Checkout our other episodes

Losing a Son to Rare Disease: Parental Isolation & Grief

“When you’re a rare parent, it’s not just the disease—it’s the loneliness, the constant feeling that no one really gets it. And when your child is gone, that grief is even more complicated. Jack taught me so much. I want other parents to know they’re not alone.”

What It’s Like to Lose Your Best Friend at 18

“She was supposed to be here for the birthdays, the firsts, the little moments that feel big. But she’s not—and that’s the part that never stops hurting.”

Why I Quit My Job to Grieve My Parents’ Deaths

“I realized I’d never actually stopped to grieve. Not after losing my mom, my dad, or my marriage. So I quit my job and took a year to do it. That time changed everything—and now I’m helping others do the same.”