by JHFHBrightSighted | Jan 16, 2025 | Blog, News, Podcast
Behind every rare disease diagnosis lies a story of heartbreak, resilience, and unshakable love. Heather sits down with Effie Parks, award-winning host of Once Upon a Gene and mother to Ford, who lives with CTNNB1 syndrome. Together, they uncover the raw truths of...
by JHFHBrightSighted | Jan 9, 2025 | Blog, News, Podcast
What happens when a 2-5-year life expectancy stretches into a decade of miracles, fear, and unconditional love? In this profoundly emotional episode of A Place of Yes, Heather talks with David Robinson, father to 10-year-old Miles, who has Microlissencephaly. Against...
