Being a rare disease parent means living in a world of unpredictability—and in this powerful follow-up episode, Jessica Troiano shares what that really looks like. From a terrifying recent emergency surgery to the countless difficult decisions she’s had to make over the years, Jess opens up about the emotional and mental toll of parenting a medically complex child.
She talks about the weight of advocacy, the fear of the unknown, and how every choice—big or small—can feel overwhelming when your child has 15 medical diagnoses. But even through the hardest moments, she continues to find strength, hope, and deep love in the journey.
Sponsored by Adirondack Trust and Amsure, this episode is a raw and honest look at the side of parenting we rarely hear about. https://www.adirondacktrust.com
Find Heather and Jake’s Help from Heaven:
❤️ APOY Instagram: https://www.instagram.com/aplaceofyespodcast/
❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/
❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/
❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/
❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven
❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast
Listen on Apple Podcasts | Spotify | iHeartRadio
FIND HEATHER & JAKE’S HELP FROM HEAVEN ⬇️
❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/
❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/
❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/
❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven
❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast
Connect with us on social media:
• Heather’s Instagram
• Jake’s Help from Heaven
• Jake’s Help from Heaven IG
• Facebook
• Our YouTube Channel
Keep scrolling for the episode transcript.
Checkout our other episodes
“A Rare Disease Took Our Children” | Dahlia’s Mom, Jessica Fein
Jessica Fein’s daughter Dahlia was diagnosed with MERRF Syndrome who passed away 1 week after her 17th birthday. In this episode Fein and Heather talk about the rare disease that took their children.
When Doctor’s Make Mistake’s with Kayla, Jax’s Mom
Jax was diagnosed with autism. In this episode, Kayla, Jax’s Mom reveals a pivotal moment when a medical professional made a mistake.
Running Beyond Limits | Shaun & Shamus Evans’ Marathon Journey
Father and son, Shaun and Shamus Evans inspired the nation with their running achievements. From a 3,200 mile run across America when Shamus was nine, to the prestigious Boston Marathon now that Shamus is 18.



