Behind every rare disease diagnosis lies a story of heartbreak, resilience, and unshakable love. Heather sits down with Effie Parks, award-winning host of Once Upon a Gene and mother to Ford, who lives with CTNNB1 syndrome. Together, they uncover the raw truths of parenting a child with special needs—from the moments of joy to the isolation no one talks about. Effie’s journey is a testament to the power of advocacy, community, and finding light in the darkest days. This episode will leave you inspired and deeply moved by the resilience of families navigating the rare disease world.
Find Effie Parks:
Find Heather and Jake’s Help from Heaven:
❤️ APOY Instagram: https://www.instagram.com/aplaceofyespodcast/
❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/
❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/
❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/
❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven
❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast
Listen on Apple Podcasts | Spotify | iHeartRadio
FIND HEATHER & JAKE’S HELP FROM HEAVEN ⬇️
❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/
❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/
❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/
❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven
❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast
Connect with us on social media:
• Heather’s Instagram
• Jake’s Help from Heaven
• Jake’s Help from Heaven IG
• Facebook
• Our YouTube Channel
Keep scrolling for the episode transcript.
Checkout our other episodes
Answering Your BIGGEST Questions | Ask Heather Anything
In this episode of A Place of Yes, we’ve compiled the most thought-provoking, heartfelt, and iconic questions from our Ask Heather Anything segment. From navigating life’s toughest challenges to sharing personal wisdom, Heather answers it ALL. Tune in for a collection of juicy questions you won’t want to miss!
Finding Light after Loss: Losing a Spouse to Cancer
Mike shares his journey through the loss of his wife to mesothelioma and the enduring impact of grief on his life. Tune in for a candid discussion on resilience, healing, and finding strength amid unimaginable loss.
Grief, Growth, & New Beginnings | Reflecting on Season 1
In this reflective episode, Heather shares how season 1’s powerful stories and emotional breakthroughs shaped her journey as a podcaster in the delicate space of grief and rare disease, and offers a glimpse of what’s in store for season 2.