Picture this—a packed restaurant, margaritas flowing, and a room full of people who love Jake. That’s Cantina Day.

It’s more than just a tradition—it’s a celebration of his life, a space to share memories, and a reminder that grief doesn’t have to be lonely. We sat down with a few attendees to talk about the podcast, their own grief journeys, and, of course, some unforgettable Jake stories.

From helping kids take their first steps to empowering families to navigate the impossible, Joe shares the passion, innovation, and personal stories that fuel Rifton’s mission.

This episode will inspire, motivate, and prepare you to rethink how small changes can have a massive impact. Don’t miss it!

Together, they uncover the raw truths of parenting a child with special needs—from the moments of joy to the isolation no one talks about. Effie’s journey is a testament to the power of advocacy, community, and finding light in the darkest days. This episode will leave you inspired and deeply moved by the resilience of families navigating the rare disease world.

What if the right piece of equipment could restore someone’s independence? Heather sits down with Joe Keiderling, the heart and mind behind Rifton Equipment, to discuss how their adaptive designs are more than just tools—they’re lifelines.

From helping kids take their first steps to empowering families to navigate the impossible, Joe shares the passion, innovation, and personal stories that fuel Rifton’s mission.

This episode will inspire, motivate, and prepare you to rethink how small changes can have a massive impact. Don’t miss it!

Together, they uncover the raw truths of parenting a child with special needs—from the moments of joy to the isolation no one talks about. Effie’s journey is a testament to the power of advocacy, community, and finding light in the darkest days. This episode will leave you inspired and deeply moved by the resilience of families navigating the rare disease world.

Behind every rare disease diagnosis lies a story of heartbreak, resilience, and unshakable love. Heather sits down with Effie Parks, award-winning host of Once Upon a Gene and mother to Ford, who lives with CTNNB1 syndrome.

Together, they uncover the raw truths of parenting a child with special needs—from the moments of joy to the isolation no one talks about. Effie’s journey is a testament to the power of advocacy, community, and finding light in the darkest days. This episode will leave you inspired and deeply moved by the resilience of families navigating the rare disease world.