options and hope

Dear Jakey,The other day I was ordering some items for a JHFH kid. We had bought them something to aid with feeding and offered to help them more. We got a big list in the mail of items recommended to help and as I ordered I found myself somewhat overwhelmed. So many...

tingly feet

Dear Jakey,I have been lost in thought over the last six days over you ~ over meds we had to give you specifically. Dr. Grottkau prescribed an anti-seizure medication for me because of my back. Long story about that but as you know we trust him. And MGH is full of...

timehop

Dear Jakey, Recently I realized something that made me pretty sad. Technology down here has changed quite a bit since you went up to Heaven and I don’t really stay on top of it too much. Honestly, your brother has surpassed me in my ability to know how to work...

blogging

Dear Jakey,It is always hard to try to replicate something once its gone. In this case I am talking specifically about the letter I wrote you yesterday afternoon that disappeared into the confusing and annoying world of technology. And of course, in my mind now it is...

struggle

Dear Jakey,I feel a little lame writing to you again because it seems as though I have only written to you when I get myself all fired up. And I really want to write to you all the time but sometimes, most times, I just don’t make the time. And I guess it goes...

total hodge podge

Dear Jakey,Once again, way more time has passed than I would have thought. Much more. The last letter I wrote you was on the 3 year anniversary of your passing. Sometimes I call it when you left. When I say that, most people think its weird. I guess it is weird but I...