by JHFHBrightSighted | Apr 10, 2025 | Blog, News, Podcast
Debbie Waffle built a life filled with joy, purpose, and hope—but nothing could prepare her for what came next. Her daughter Kelsey’s medical challenges grew more complex over time, leaving Debbie desperate for answers and overwhelmed with fear. And when Kelsey died,...
by JHFHBrightSighted | Apr 2, 2025 | Blog, News, Podcast
Being a rare disease parent means living in a world of unpredictability—and in this powerful follow-up episode, Jessica Troiano shares what that really looks like. From a terrifying recent emergency surgery to the countless difficult decisions she’s had to make over...
