Being a rare disease parent means living in a world of unpredictability—and in this powerful follow-up episode, Jessica Troiano shares what that really looks like. From a terrifying recent emergency surgery to the countless difficult decisions she’s had to make over the years, Jess opens up about the emotional and mental toll of parenting a medically complex child.
She talks about the weight of advocacy, the fear of the unknown, and how every choice—big or small—can feel overwhelming when your child has 15 medical diagnoses. But even through the hardest moments, she continues to find strength, hope, and deep love in the journey.
Sponsored by Adirondack Trust and Amsure, this episode is a raw and honest look at the side of parenting we rarely hear about. https://www.adirondacktrust.com
Find Heather and Jake’s Help from Heaven:
❤️ APOY Instagram: https://www.instagram.com/aplaceofyespodcast/
❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/
❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/
❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/
❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven
❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast
Listen on Apple Podcasts | Spotify | iHeartRadio
FIND HEATHER & JAKE’S HELP FROM HEAVEN ⬇️
❤️ Heather’s Instagram: https://www.instagram.com/heathersstraughter/
❤️ Jake’s Help from Heaven: https://jakeshelpfromheaven.org/
❤️ Jake’s Help from Heaven IG: https://www.instagram.com/jakeshelp/
❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven
❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast
Connect with us on social media:
• Heather’s Instagram
• Jake’s Help from Heaven
• Jake’s Help from Heaven IG
• Facebook
• Our YouTube Channel
Keep scrolling for the episode transcript.
Checkout our other episodes
How I Cope with My Son’s Birthday Now That He’s Gone
“His birthday is coming, and my whole body feels it. People think grief fades with time, but these days—birthdays, anniversaries—they hit just as hard. I should be planning a party. Instead, I’m learning how to survive another year without him.”
Self-Care Sounds Nice, But Who’s Watching My Kid?
“Self-care sounds great until you realize there’s no one else to watch your kid. When you’re a full-time caregiver, even basic things—like rest, a walk, or five minutes alone—feel impossible. But if I don’t take care of myself, I can’t show up for my family. That’s not selfish. That’s survival.”
What I Did After My Daughter Died: Grief, Purpose & Carrying Her Legacy
After Kelsey died, I blamed myself. I replayed every decision, every appointment, every moment. I thought I was prepared to fight for her—I wasn’t prepared to lose her. Grief didn’t just touch my life, it unraveled it. And for a long time, I didn’t know how I’d ever come back from that. This is the part of motherhood no one talks about.