Letters to Jakey

Indecision

Dear Jakey,You are up to your old tricks my boy. Are you a little sick or about to be a lot sick? So hard to know. I wish I knew. You would think I would be better at judging this by now but each time I have no idea what to do. This morning was no different. You had a...

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Jake’s People II

Dear Jakey,Today you had Minor Improvements with Karen after school. You were sleeping when we first got there so I am not sure how much you heard of our conversation. Karen was pretty stressed out but I think she was pretty excited that you were there and she...

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Papa Smurf

Dear Jakey,I know you already know this but you have quite the amazing Daddy. It is so important to him that you participate in all of our family stuff, things that I sometimes would keep you from. Not so much because I don't want you there but because I just always...

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Giving Thanks

Dear Jakey,Today at church, Father Paul talked about being thankful. He talked about being thankful for all the little things and not just the "big ticket" items - family, friends, etc. He talked about waking up and being grateful for his morning coffee, his breath of...

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Waiting Game

Dear Jakey,Dr. Browning called yesterday afternoon and somehow I missed the call and just got it about an hour ago. Not sure how I managed to miss that. Anyways, I have called back and we are now waiting for her return call. I may have to page her soon and enter...

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Milestones

Dear Jakey,I tell you these things because I want you to understand how much I love you. I also want you to realize that I understand how hard you work at certain things each day and I hope you realize that I know every movement you make, every bite you eat and every...

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Seizures suck

Dear Jakey,What does it feel like to have a seziure? I wish I knew. Last night sucked, huh?  Every time you fell asleep, you had one and it woke you up - for hours on end. It seems like it has been a while since they were so bad. I can never figure out what...

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Deal?

Dear Jakey,Last night was G-Pa's golf tournament for the Epilepsy Foundation. You have somehow become the posterboy for epilepsy around here - not sure how or why that happened but a lot of people came out to golf and many came in support of you. I wonder what you...

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Fire Trucks

Dear Jakey,On Friday, Xavier was here to work with you. You guys were doing your thing in the therapy room and I was in the kitchen. At some point I hear Cait say "Look Ethan, Jake's riding the fire truck" and heard them go in the other room. I ran in to check it out...

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Jake’s People

Dear Jakey,Something special happened today. When Cait came in there was an envelope in the door. It was a letter to you! It was from Linda, your old friend (not old in age, old in that she's known you since you just turned 1). She used to come over and do speech...

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